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Leftovers
by Dan Beams
Ryan's World
My wife and I had a unique experience this past
weekend. We watched my sister-in-law's four children over night.
Not that watching four children under the age of ten isn't unique
in its own right (at least for us), but the oldest has a 'severe
learning disability'. A very broad category, but the only diagnosis
a myriad of doctors can offer Ryan's parents. They admit he has
some characteristics of autism, but not enough to warrant that
diagnosis. They say that perhaps in the next twenty years they
may have a category to place him in. How reassuring that must
be. It saddens me that in a world that demands individuals be
lumped into a category to be accepted, there is no slot for Ryan.
Ryan does exhibit several traits that point
to autism, such as his obvious lack or need for social interaction.
He seems to be most content with paper, literally engrossed for
an hour, taking one sheet after the other and methodically ripping
them into shreds. Bear in mind this is not some haphazard, frenzied
endeavor. Certainly on rare occasions it evolves into that, but
ninety percent of the time Ryan will tear the sheets long-ways,
into unbelievable equal widths with a precision that baffles
me. He will continue his task until the paper runs out, so finally
my rough draft scrap heap has met its match.
Since Ryan's birth my brother and sister-in-law
have lived some distance away so we have never had the luxury
of seeing them on a regular basis. During Ryan's early years
he was mesmerized by movies, Disney movies in particular. Unfortunately
he was also prone to frequent physical outbursts of emotion.
Before moving on I feel a need to explain, so there's no misunderstanding
of what I'm about to describe. During these outbursts, there
were times when Ryan had to be physically restrained before reason
could be imparted. He had no concept that his flailing about
inflicted pain on those nearby, mainly his parents. The restraint
was not meant to be mean-spirited or punishment, but only allowed
the necessary time for information to be absorbed. 
Several years ago when we were visiting,
one such outburst took place after watching 'Aladin'. I'm not
certain anyone ever discovered the cause of his irritation, but
no one doubted the severity of it. After his mother's repeated
attempts to calm him were rebuffed, her husband stepped in. With
Ryan's thrashing arms and legs now in check, his father attempted
to reason with him. Ryan was having no part of it; physical restraint
only seemed to fuel his frustration. He developed a most evil
look in his eyes, particularly for a child, and screeched out
at his father, "street-rat!!" We all burst into laughter,
unable to help ourselves. Ryan may not have understood 'Aladin'
completely, but he grasped the context precisely and the derogatory
manner in which this phrase was used in the movie.
So far it doesn't appear that he has reached
any kind of learning plateau, his discoveries are only delayed
by several years. Ryan has made significant progress since the
last time we saw him. Physical outbursts are nearly non-existent
and he speaks more readily now than ever before. Although at
ten, he still typically limits his answers to very short sentences.
I'm left with the impression he doesn't lack comprehension, only
the ability or perhaps the desire to put his response into words.
His mother also tells us he is drawn to music, and has made a
new friend at school. "Lily", who has actually been
diagnosed with a variation of autism, is frequently in his thoughts
and readily expressed.
On Saturday evening in our home, democracy
ruled; it was decided through popular vote we would have pizza.
My wife was setting the table when Ryan came back to inform me
it was time for dinner, "Ready uncle Dan
.PEEETSAAAAA!",
spelled exactly as it was enthusiastically exclaimed. After we
finished eating I asked him if the pizza was good? His eyes brightened
two shades as he reached for my hand and raised it as high as
he could reach, "High five-PEEETSAAAAA was good!"
Soon after dinner, barely 6:15 pm, Ryan
has settled down for the night. When fatigue sets in he doesn't
hesitate to announce "jammies". Once his mind is made
up, he's out of his clothes, into his sleep-ware, and looking
for the 'rack', but who could blame him? These are the times
I envy Ryan. He doesn't allow the surrounding or the presence
of others to influence his moods nor decisions. How bad could
that be? Believe me, two hours into a boring visit from unexpected
company I would love to lean back, casually yawn, and yell "jammies"!
Sending my house guests scrambling for their coats and keys,
unsure of the precise moment I would start removing my clothing.
I do apologize; however accept no responsibility for any unpleasant
visuals you may have just encountered.
On a more serious note, I sit contemplating Ryan's future. I'm
left with more questions than answers. Will he ever lead a completely
normal life? My first response is doubtful, barring a miracle,
but somehow it seems very short-sided to believe that his disadvantage
will preclude him from experiencing the world. Perhaps from a
different perspective, but why shouldn't he have the ability
to experience life to its fullest; happiness, sadness, companionship,
and acceptance into this 'normal world'. This leads me to ask
perhaps one of the greatest questions of all. What is 'normal'
anyway? Why will everyone reading this article, including its
author automatically assume they fall in that category? Perhaps
it's merely the perception of belonging, something that we all
crave, even those who 'appear' different.
Ryan's Lullaby
What do you see my darling boy?
All your dreams, I wish them true.
What do you hear my darling boy?
My words I pray are reaching you.
What do you desire my little man?
For I will give you them in two's.
Where do you hurt my little man?
Mommy will kiss away your boo's.
What will you be my grownup man?
I pray you'll always find your feet.
Where will you be my grownup man?
As I grow tired and fall asleep.
Dan Beams is a 40-year-old
self-described simple man. He lives in a small town in central
Illinois, with his wife, Beth, and two children, Allie 15, and
Jacob 12. By a strange twist of fate, the loss of his job last
year, led to his love of writing. Although this new passion is
less than a year old Dan has established a great connection to
the intrinsic power of the written word. Writing has again impressed
upon him the fact that the key to a successful life is to possess,
in great abundance, those things not easily measured.
You can read more of Dan's
poetry at http://poeticjustice-dan.blogspot.com/
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